SERGG is a network of genetics and newborn screening providers in Alabama, Florida, Georgia, Louisiana, Mississippi, North Carolina, South Carolina, Tennessee, Puerto Rico, and the US Virgin Islands.
The Powell Gene Therapy Center (PGTC) at the University of Florida (UF) has been instrumental in the development of newer, safer agents for the delivery of therapeutic genes to patients with genetic diseases.
The Genetic Testing Registry (GTRĀ®) provides a central location for voluntary submission of genetic test information by providers. The scope includes the test's purpose, methodology, validity, evidence of the test's usefulness, and laboratory contacts and credentials. The overarching goal of the GTR is to advance the public health and research into the genetic basis of health and disease.
Designed by the Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI) to help people find useful information about genetic and rare diseases.
Network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and public policy organizations.